Turning into a schoolyard we discover hundreds of people gathered to
welcome us with singing and smiles. Being ushered into a crowded classroom
we are surprised to meet the local officials from both the parish and
the government and realize this party has been well planned. Ah ha!
We represent a signal to these good people that help is on its way to
combat AIDS. It is unfortunate, but true, that often the "muzungus"
(foreign people) bring resources and programs, opportunity and hope.
Despite Wanyange's location of just being 15 miles from the sizeable
town of Jinjja, where AIDS care is supposedly available, no one in Wanyange
has access to HIV testing, medications, or treatment. For over 25 years
the people here had been witnessing the wasting disease of AIDS killing
neighbors, relatives, and children without anything to fight it with.
The local mayor greets us and tells us about the 2300 orphans now living
in Wanyange, primarily with grandparents who can not provide for them.
A few of these orphans offer up welcome songs and recite a poem "AIDS,
what have we done to you?" which has us weeping with these beautiful
young ones.
Bringing testing and counseling to Wanyange was the brainchild of Edward
Semekoola, an HIV+ man who works for less than $60 a month as an AIDS
home visitor. He had brought a sick man back to Wanyange to return him
to his family to die at home. While there he discovered the complete
lack of HIV testing, education or care. He pulled together his friends
and they pooled their small earnings to buy HIV test stripes. They trained
local women to "mobilize" from home to home spreading the
word about testing. And so it started with just the good-hearted impulse
of a few volunteers. In the first three weeks the lab had tested 320
people for HIV. Over 100 were positive.
This day, when it comes time to deliver the services that our team
of volunteers promised the waiting throng, it turned out they could
afford just 19 tests, which costs about $10. One hundred and fifty people
were waiting patiently in a neat line that snaked along the hallways
of the school for the test. Many had walked miles to get here. What
to do?
"Sorry. Sorry. Stock out." A common experience here in Uganda.
The people will to come back next Saturday in hopes that more tests
can be done.
Piling back into the van we head into the eye of the AIDS epidemic.
We are making home visits to a few people too sick to leave their homes.
Driving over deeply rutted red dirt paths we stop near a grouping of
one-room mud houses. A few chickens scatter and a small naked child
shrieks at the white folks never before seen in this place. We move
into a small dark room where slowly I can see a lump of crumbled sheets
stained by the red dust on a tattered cardboard on the floor. The rapid
breathing moves the sheet slightly. From behind emaciated sockets two
eyes look out with a sense of holding on. They speak of patient resignation
to a slow dying.
Aminah is 39 and lives with her four children and five AIDS orphans
from her brothers and sisters who had passed away from AIDS. Her husband,
David, returns from his bath with a towel around his boney shoulders.
He is sick also but has never been tested for HIV.
A slow and gentle examination of Aminah's mouth, neck glands, and lungs
reveals thrush, swollen nodes, and probably TB. It is likely that many
or all of the inhabitants in this small space share TB. The neighbors
were providing food. There is no money to take a public bus to town
to the clinic. There is no clean water. There is no hope and nothing
to do but give love. Aminah died the following week.
Arriving 10 minutes later at Dennis' home we see a nice middle class
house with plaster and paint. The AIDS virus does not discriminate but
takes the rich and poor alike. Dennis was one of the first to be tested.
Looking at his thin frame it is not a surprise that his test was positive.
Returning home he undertook the difficult conversation with his wife
about his test. She turned from him, packed her things and left Dennis
and their four children and three orphans. She has not been seen since.
"Dennis you must go for care in Jinjja to the government hospital.
You must get a CD4 test and then you must get on medicine. You are still
mobile
don't waste time
you are dying."
On to Mary's house which sits close to the shores of Lake Victoria.
The fishing villages all along the coast of the lake are among the hardest
hit by HIV. Seems the fishermen make their money all at once and go
out on the town and engage in unsafe behavior. Then they bring home
the virus.
Mary, only 30, is lying on the floor on a thin woven mat in her one
room hovel. Her 9-year-old daughter, Adoch stands shyly watching in
the doorway. Mary's husband died a year ago of AIDS. Last month her
one and a half year old son also died. Mary was too sick to go to the
burial and so the neighbors laid the baby to rest. The other children
were sent back to the grandparents leaving Adoch to care for her mother
until she dies. This woman needs hospitalization, food, and medicines.
All of this is beyond her or Uganda's ability.
Finally we arrive at the modest house of Nam. She is standing up gesturing
with her arms as if she is nailed to a cross. Her eyes glaze over and
she mumbles prayers. She is probably suffering from dementia from the
virus. She is so thin it is amazing she can move in such an agitated
way. The previous day neighbors, who had never seen her act this way,
tried to take her to TASO, an AIDS service organization in nearby Jinjja.
After waiting several hours with hundreds of others in need of care
and with a ranting Nam, they returned home, unseen and out of hope.
40 million people suffer from HIV worldwide. 28 million of these live
in sub Saharan Africa. There is a heroic effort to "roll out"
the life saving medicines, antiretrovirus (ARVs), and AIDS care throughout
the world. This is an enormous and complicated task. It is being undertaken
through the determination of the international community with the leadership
of the United Nations, and many leaders in both the developed and developing
countries. Individuals like Bill Gates, Nelson Mandela, Bill Clinton,
and Bono are all devoting themselves to this fight. Doctors and nurses
are being trained, research is moving forward, and clinics are being
built. But these efforts reach only 24% of the people that need AIDS
care in Africa. These services and advances start in the cities and
most Africans live in villages. How long will it be before AIDS care
will make its way along dirt roads to reach Wanyange and other villages?
Not fast enough for Dennis, Mary, Aminah, or Nam. Not fast enough for
millions of others.
Wanyange still lies beyond the reach of the world's efforts to bring
AIDS care. But perhaps now, through the efforts of a few volunteers
and in partnership with BeadforLife the first waves of help are lapping
at the shores of Wanyange. It is now at the edge of hope. Stay tuned
to see what we can accomplish in Wanyange.
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